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Thurak1
Psygod9
D.E.F.I.A.N.C.E
329
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Posted - 2013.10.22 01:26:00 -
[361] - Quote
Not the best of news with the latest updates. Lets hope this turns around for the little guy and the family. I think they primarily update this site: http://www.youcaring.com/medical-fundraiser/help-with-baby-weston-s-medical-expenses/92940
here is some background info for what i think they were talking about.
I guess the good side to this is that it has been discovered very early. The re-test will confirm of course but i am betting the dr's are already making plans as though it is a true positive result.
from webmd.com:
Galactosemia is a rare, hereditary disorder of carbohydrate metabolism that affects the body's ability to convert galactose (a sugar contained in milk, including human mother's milk) to glucose (a different type of sugar). Galactose is converted to glucose by a series of three enzyme reactions. The disorder is caused by a deficiency of an enzyme known as "galactose-1-phosphate uridyl transferase" which is vital to this process.
Galactosemia may also be referred to as classic galactosemia because a few variants of the gene for galactosemia have been identified. One variant causes a milder form of the disorder known as Duarte galactosemia. Classic galactosemia is the most severe form.
Because milk is the staple of an infant's diet, early diagnosis and treatment of this disorder is absolutely essential to avoid serious lifelong disability.
Updates
10/21/2013
by Christina Lockerd (Family Friend)
Day 25 equals 20th transfusion. Weston tested positive. For galacticema. They are retesting to be certain. Barium enema to test for blockadge surgery to follow if necessary. Bad day
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10/21/2013
by Christina Lockerd (Family Friend)
Update : Frustration. Today we hit a wall with Weston's recovery. His stomach is swelling an he is unable to stool. He needed more blood yesterday an I fear stress, exhaustion n mental fatigue is taking affect on Mandy an I. We are short fused an agitated. We want to see Weston get better an are so frustrated with are inabilities' to assit that we lash out. Weston makes. A bit of progress an WAmO we get hit with a setback. Procedure in the morning to investigate him surgery to follow if needed. If your friend, family or acquaintance I apologize if Mandy or I seem easy aggitated or moody. Please understand we are under some odd circumstances and are still learning to deal nd cope with all of this
Pa sry for typos wrote on my phone its 1 am and I am sitting in a park no spell check.
- See more at: http://www.youcaring.com/medical-fundraiser/help-with-baby-weston-s-medical-expenses/92940#sthash.xRXNOxjL.dpuf |
Mathew LaBorde
The Generals
EoN.
29
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Posted - 2013.10.23 10:37:00 -
[362] - Quote
someone call the news channels damnit... |
LilKymm1981
SVER True Blood
Public Disorder.
28
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Posted - 2013.10.24 19:32:00 -
[363] - Quote
Update: Weston received multiple rescues, mechanical and chemical, yesterday. He continues today to need sedation because he keeps dropping his heart rate to dangerous levels (below70). He has another transfusion pending his 22nd. Biopsy if his colon today at 12. He was making progress with his kidneys until today. His urine dropped to 1.3 from over 5.5. As well as his cretin level has also gone back up from a 5.4 to a 5.6--. it is supposed to be (.02). So definitely not good. Specialist will be by later to speak with us again. We asked for the Chaplin to come by an bless him again. Weston decided during the blessing it would be a good time to drop his heart yet again.
Angle of God
My guardian dear
To whom his love commits me here
Ever this day or night
Be at my side to light and guard
To rule and guide.
Amen |
Thurak1
Psygod9
D.E.F.I.A.N.C.E
340
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Posted - 2013.10.25 23:21:00 -
[364] - Quote
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Shotty GoBang
Pro Hic Immortalis
1905
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Posted - 2013.10.30 15:02:00 -
[365] - Quote
Update:
Biopsy. Done. Some bleeding, surgery is a definite. How many an when will b talked about tomorrow. Galacticmia test came back positive as a carrier again which is very bad, more testing is needed. Bad day getting worse. If any one has a miracle or some good luck my son could use. As each obstacle piles up, it gets harder to see. I spoke with the Chaplin in hopes to feel better but this dark cloud won't stop rainy on us. God show us mercy please. Heal my son |
LilKymm1981
SVER True Blood
Public Disorder.
28
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Posted - 2013.11.05 00:17:00 -
[366] - Quote
November 2
Update : At another crossroad in Weston's life. They did extensive testing to figure out why Weston was becoming so sick with no results. Then without warning Weston began to get better. No bleeding, his counts were coming back to normal, creatnine level was going down. doctors were happy an optimistic.
Today all of that is gone. Weston is once again bleeding heavily from his stomach. Its not even 10 :30 am an West has already had 2 transfusions today alone. A total now of 28 blood transfusion. All of these transfusions are keeping him from bleeding out yes, but they do have effects. His spleen,liver an kidneys are all negatively affected by massive introduction of blood product.
Just another catch 22. No sign of infection or a wound nothing that points to anything. Just my son, sick an bleeding. An here I sit typing to you because I am useless once again to do anything about it.
I am doing the only thing that I can do an asking for you all to pray, to plead, to beg for healing. Weston wants to be here, watch the video he knows when we are talking he waves hello already, he is so smart an strong. The doctors need prayers of enlightenment that they figure this out. Weston needs to come home an show the world just how special he is! |
LilKymm1981
SVER True Blood
Public Disorder.
28
|
Posted - 2013.11.05 00:18:00 -
[367] - Quote
November 4, 2013 10 hours ago via Windows Phone
Weston is still bleeding from his stomache doctors do not know why. They want to go a bone marrow biopsy to gather information. He has 31 blood transfusions now. still no answers. Doctors have point blank said they do not know what is wrong. |
Kaltos Darksbane
KNIGHTZ OF THE ROUND
96
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Posted - 2013.11.06 10:10:00 -
[368] - Quote
Everyone is still praying for your family.
Dust 514?...............More like Dust 5150.
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IAmDuncanIdaho II
R 0 N 1 N
124
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Posted - 2013.11.07 07:52:00 -
[369] - Quote
Thank you for the updates. We're still thinking of you guys, and hoping for a cure. |
fawkuima juggalo
Eternal Beings
144
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Posted - 2013.11.07 11:53:00 -
[370] - Quote
bump for you bro....
btw make sure what ever you or they feed him is organic.
http://www.naturalnews.com/040727_gmo_feed_severe_inflammation_pig_stomachs.html
im sure your looking for every possible cause of whats happening.
truthfully i mean this with all respect in the world and i cant comment on what your going through. but I KNOW there is a direct correlation between this and a 40%-60% increase in stomach ulcers. so it cant hurt to stay away from it.
seriously, i pray for you and your child, no one should ever have to go through this but keep in mind....
YOUR SON IS SO LUCKY TO HAVE A FATHER AS STRONG AND DEDICATED AS YOU- REMEMBER THAT!
and keep pushing on.
FIGHT FOR A CAUSE, EVEN IF IT'S NEXT TO YOU.
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Thurak1
Psygod9
D.E.F.I.A.N.C.E
368
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Posted - 2013.11.09 04:26:00 -
[371] - Quote
Things just have to turn around for this little guy. |
Death Dealer86
Molon Labe.
RISE of LEGION
76
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Posted - 2013.11.09 06:42:00 -
[372] - Quote
It's been awhile since I posted, just wanted to let you know that your family is still in my prayer's. I check back daily as if Weston was my own. Stay strong and the updates are appreciated. I can't wait for the day that the updates bring wonderful news. |
Thurak1
Psygod9
D.E.F.I.A.N.C.E
374
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Posted - 2013.11.14 01:35:00 -
[373] - Quote
Death Dealer86 wrote:It's been awhile since I posted, just wanted to let you know that your family is still in my prayers. I check back daily as if Weston was my own. Stay strong and the updates are appreciated. I can't wait for the day that the updates bring wonderful news.
Same here. I just keep thinking that every day he is getting closer to beating this and i hope i am right. When they are so small they are so vulnerable but every day they grow bigger and bigger (for that first year this seems almost like a literal statement they grow so fast in that first year its amazing)
I truly hope Weston is getting better and putting on some pounds. |
LilKymm1981
SVER True Blood
Public Disorder.
28
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Posted - 2013.11.18 06:48:00 -
[374] - Quote
I will get all the updates and post them later on today sorry for any delay and thank you all once again for keeping Weston in
Your thoughts and prayers..
Sver True Blood Og 4 life officer Lilkymm |
LilKymm1981
SVER True Blood
Public Disorder.
28
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Posted - 2013.11.20 00:41:00 -
[375] - Quote
A quick update Weston's body is building up antibodies to all the blood he has received a total of 40 transfusions..the doctors still don't know what's wrong or what's causing all this..praying for an early Christmas miracle.. |
Quickgloves
SVER True Blood
Public Disorder.
861
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Posted - 2013.11.22 16:09:00 -
[376] - Quote
Hello everyone. It has been a long time since I landed on these forums. I just want to personally come here an show my thanks for all that you have done for my family.
As a gamer we are all privy to the wickedness of some and the comardirty of others. I saw that some people once again took reality for granted becasue they think this virtual world we live in doesnt matter. Yet so many of you have shown otherwise.
So many of you my enimes, allies and friends have supported me through these times of hardship. Thank you.
You donations allowed me to stay near my sons hospital for the last two months without me losing my house. I am approaching very tuff descions soon on how I am going to juggle work an my sons health in order to keep my home, but you all have made these last 2 months so much easier for my family. Thank you
He is 3 days shy of 2 mothns old today. THat is a gift all in itself. CCP thank you for creating a world that I and many others can belong to. Your community here has accpeted me an my men, challenged us to be great, and when we fell upon dark times they lifted us up an saved us.
So many of you may not understand just yet the feeling that a father has for his son, yet all of you responded with such generosity an love and care that you have blown me away. I tell alot of people I meet about STB, about Dust, about all of you. They then go on here or other forums that I have been apart of and see the true nature of gamers.
This a prime example of what humanity is. We are a species of understanding an comapssion. You all should know I have never felt the amount of love you all poured out to me. Your support, care an prayers kept my fire lit. In the darkest hours an the toughest moments I was reminded of how many of you still want to shoot at me an my son when we finally get back on Dust.
Reality has a funny way of warping things in a game. Thank you for putting everything aside an giving me an my family hope. I hope to send a true heart felt apology on an episode of BOTG if its still airing when I hope I can take my son home one day.
Just an offical update now that my mushy sentimental stuff is finished.
Weston will be going on dyalsis soon for his kidneys. When he reaches 18-22 pounds he will undergo surgery for a kidney transplant. He requires daily platlettt transfusisons due to a blood disorder that casuses an enzemye in his blood to destroy his platlets an red blood cells. Docotrs are trying to figure out what it is in order to treat it. He needs a few surgerys in prepartion for dyalsis an transplant. Weston also suffers from hyperbullirubin. A condition that turns him yellow an marks a level of liver dysfunction. He is almost 8 weeks old an has had about 43 blood transfuisions. So if your the giving type, please check out your local blood drives and help restock the shelves. Weston will be in the hosptial for a long time, he will need weekly visists even after I am able to take him home. Right now the biggest issues is the blood disorder an kidney disease. THey need to fix the blood disorder in order for Weston to have surgery. Bleeding complications are keeping us from moving forward. During a MRI scan they noticed that Weston also sustained a level of brain damage to his frontal lobe. They do not know the level of damage jsut yet.
Many things are happening but every morning I get up an look at my son. That is only possible becasue of all of you. Thank you.
-Quickgloves
C0-Founder(STB), Ex-CEO(STB), STB og 4 Life, Duster. |
Thurak1
Psygod9
D.E.F.I.A.N.C.E
379
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Posted - 2013.11.23 09:43:00 -
[377] - Quote
Best of luck Quickgloves. I hope everything goes well. It sounds like the doctors now have a plan which is good to hear. I hope the little guy is able to go home soon.
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IAmDuncanIdaho II
R 0 N 1 N
145
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Posted - 2013.11.23 11:22:00 -
[378] - Quote
Best of luck, you're in our thoughts. Thank you for the update and kind words |
Death Dealer86
Molon Labe.
RISE of LEGION
86
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Posted - 2013.11.25 03:44:00 -
[379] - Quote
Yes, thanks for the update. We all know you don't have to share such details, but a lot of us feel as if Weston is part of our family. Keep your head up and stay strong. |
Cat Merc
Ahrendee Mercenaries
EoN.
4149
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Posted - 2013.11.30 16:50:00 -
[380] - Quote
wow, I never saw this thread before.
Sadly I can't donate anything right now, but I will soon.
Best of luck for your kid Quickgloves.
Shield regeneration bonus for Gallente Assault is about as useful as Sharpshooter for Nova Knives.
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Atiim
Living Like Larry Schwag
1460
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Posted - 2013.11.30 16:52:00 -
[381] - Quote
o7 Quickgloves and your son too!
Check out my corp's new website here :D
-HAND
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Death Dealer86
Molon Labe.
RISE of LEGION
88
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Posted - 2013.12.10 04:40:00 -
[382] - Quote
Anybody have any news on the young man? |
Quickgloves
SVER True Blood
Public Disorder.
864
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Posted - 2013.12.20 19:09:00 -
[383] - Quote
https://m.facebook.com/?_rdr#!/jason.selby.7?__user=601464373
that is my personal Facebook page set to public it is hard to post updates in many places, plus videos an pictures are set to public for all of you that care. Ty again. Words nor emotion can properly express my gratitude to all of you. |
IAmDuncanIdaho II
R 0 N 1 N
198
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Posted - 2013.12.20 19:45:00 -
[384] - Quote
Thank you for this, it's great to see your family and friends supporting you in your time of need. Good luck for going back to work, that will be hard to break you guys up, but you're all strong enough to deal, and you hopefully still can spare the time to be together at times. You'll be together in spirit when not in body, and we guys are still keeping you in our thoughts, and hoping for cures :) |
bundie bitches
RARE850
2
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Posted - 2013.12.22 15:15:00 -
[385] - Quote
this is a very moving thing that the dust community has done i only wish it were around to be able to help all chikdren who are born early. i was an early birth child though i am thankful that i didnt not have as many of the health issues that most early babies have i do know what kind of a toll it takes on those who love you most as i was reminded growing up about it. as ceo of rare850 i encourage all corps to come together. on behlaf of rare850 i would like to appologise for not being able to contribute more but i do know that if nothing else whatever is able to be contributed is better than nothing at all . so please everyone help this family out. the more we help them the more we help ourselves at being a little more humane which is wht life is all about, helping those who are unable to fully help themselves no matter what the reason. |
Fire of Prometheus
DUST University
Ivy League
2609
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Posted - 2014.01.05 02:32:00 -
[386] - Quote
Sorry if I missed this already, but how is Quickgloves and his child doing right now?
Proud member of the Commndo 6
<3 Commando AK.0
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Quickgloves
SVER True Blood
Public Disorder.
898
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Posted - 2014.01.05 22:43:00 -
[387] - Quote
Fire of Prometheus wrote:Sorry if I missed this already, but how is Quickgloves and his child doing right now?
he is doing well this week. If you want to see him follw my Facebook wall. Link on prior page. |
Fire of Prometheus
DUST University
Ivy League
2632
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Posted - 2014.01.05 22:50:00 -
[388] - Quote
Quickgloves wrote:Fire of Prometheus wrote:Sorry if I missed this already, but how is Quickgloves and his child doing right now? he is doing well this week. If you want to see him follw my Facebook wall. Link on prior page.
That's good to hear :D
I don't have Facebook so I can't but I'm glad that he's doing better :D
Proud member of the Commndo 6
<3 Commando AK.0
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Quickgloves
SVER True Blood
Public Disorder.
924
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Posted - 2014.01.06 18:07:00 -
[389] - Quote
Fire of Prometheus wrote:Quickgloves wrote:Fire of Prometheus wrote:Sorry if I missed this already, but how is Quickgloves and his child doing right now? he is doing well this week. If you want to see him follw my Facebook wall. Link on prior page. That's good to hear :D I don't have Facebook so I can't but I'm glad that he's doing better :D
all in all he is having some of the same issues, but is stabilizing. Still needs a kidney transplant and has sone rare blood thing they can't I'd yet. But he is growing an still fighting so that's good for me. |
Fire of Prometheus
DUST University
Ivy League
2646
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Posted - 2014.01.06 18:10:00 -
[390] - Quote
Quickgloves wrote:Fire of Prometheus wrote:Quickgloves wrote:Fire of Prometheus wrote:Sorry if I missed this already, but how is Quickgloves and his child doing right now? he is doing well this week. If you want to see him follw my Facebook wall. Link on prior page. That's good to hear :D I don't have Facebook so I can't but I'm glad that he's doing better :D all in all he is having some of the same issues, but is stabilizing. Still needs a kidney transplant and has sone rare blood thing they can't I'd yet. But he is growing an still fighting so that's good for me.
That's good to hear that he's stabilizing, I can only imagine what he's going through, and you aswell :(
Hope he makes a speedy recovery :)
Proud member of the Commndo 6
<3 Commando AK.0
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