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virgindestroyer7 wrote:

Update 17: Weston opened one eye today! He looked over at Mandy an I.

I was lost for words. Mandy cried an spoke to him softly. She about crushed my hand from squeezing it. I was over-whelmed with pride. Wes an I shared only a brief gaze together. It was worth it. Every moment spent by his bed every time i startled myself awake to check on him from the metal chair i sit in next to his bed. Just to get that moment between us. A moment where he knew I was here for him. I sent a picture to my brothers an mother one of them can post it my phone is not smart enough!

Yesterday the doctors for a second time failed a procedure known as a spinal tap. It consist of them inserting a needle into the spine an drawing a fluid they can test for a infection. They intend to send my son to a radiology department to use equipment to guide the pick line hopefully tomorrow. All in all he is doing good today. Urine output is about the same so he is still able to keep the dangerous levels in his blood low. They are again changing his nutrients to increase the amount they can give him an optimize the nutrients. It was nice today for Mandy an I to spend some alone time with him an actually have him move an react to are voices. He is strong very strong. His ability to give us so much joy is amazing.

Weston Good job today Mommy an Daddy love you so much!

I have been flooded with text messages emails an letters of love from all of you. I again Thank you all so much for everything. I have to draw attention to something that I have of pride in. The family of gamers that i play online with have gone above an beyond to support me. They view me as family friend an even in game enemy. Here is a thread of all of them showing support. A brief insight to my hidden world of online gaming.
https://forums.dust514.com/default.aspx?g=posts&t=113807 Here is a link to all the people that know I play video games an don't understand why I say its something they have to experience to understand.


Author	Thread Statistics \| Show CCP posts - 3 post(s)
Thurak1 Psygod9 D.E.F.I.A.N.C.E 256	Posted - 2013.10.08 03:45:00 - [1] - Quote I wish you the best and i hope everyone can return home happy and healthy in a timely manner. Nothing is more important than our children.
Thurak1 Psygod9 D.E.F.I.A.N.C.E 259	Posted - 2013.10.08 09:09:00 - [2] - Quote virgindestroyer7 wrote: Update 17: Weston opened one eye today! He looked over at Mandy an I. I was lost for words. Mandy cried an spoke to him softly. She about crushed my hand from squeezing it. I was over-whelmed with pride. Wes an I shared only a brief gaze together. It was worth it. Every moment spent by his bed every time i startled myself awake to check on him from the metal chair i sit in next to his bed. Just to get that moment between us. A moment where he knew I was here for him. I sent a picture to my brothers an mother one of them can post it my phone is not smart enough! Yesterday the doctors for a second time failed a procedure known as a spinal tap. It consist of them inserting a needle into the spine an drawing a fluid they can test for a infection. They intend to send my son to a radiology department to use equipment to guide the pick line hopefully tomorrow. All in all he is doing good today. Urine output is about the same so he is still able to keep the dangerous levels in his blood low. They are again changing his nutrients to increase the amount they can give him an optimize the nutrients. It was nice today for Mandy an I to spend some alone time with him an actually have him move an react to are voices. He is strong very strong. His ability to give us so much joy is amazing. Weston Good job today Mommy an Daddy love you so much! I have been flooded with text messages emails an letters of love from all of you. I again Thank you all so much for everything. I have to draw attention to something that I have of pride in. The family of gamers that i play online with have gone above an beyond to support me. They view me as family friend an even in game enemy. Here is a thread of all of them showing support. A brief insight to my hidden world of online gaming. https://forums.dust514.com/default.aspx?g=posts&t=113807 Here is a link to all the people that know I play video games an don't understand why I say its something they have to experience to understand. Thank you for the update. I read through the gofundme page to see what was going on. I greatly hope that the little one starts to greatly improve quickly.
Thurak1 Psygod9 D.E.F.I.A.N.C.E 266	Posted - 2013.10.09 00:40:00 - [3] - Quote LilKymm1981 wrote: Update 18 : 1-0/8 4:23 p.m. So today Mandy and I spoke to a swarm of different specialist. Ne o-ontology, Hematology, Ne-phrenology an a few others. Each had many different things they wanted to discuss. We woke to a call from the hospital about Wes. He was once again bleeding, this time in his lungs. They gave him another transfusion of plasma. Taking his total number of blood product transfusions to 15. Then they used suction to remove the secretion and blood from his lungs. They x-rayed to search for bleeding an noticed his breathing tube had migrated south. So they re-adjusted. After hours of deliberation as to the cause of the bleeding they decided that it is possible that the tube irritated the trachea causing bleeding or that the tube was rubbing the wall of his lung causing bleeding. Just to be certain they sent the Hematology team to check him. The Ne-phrenology team was much less supportive. They gave us detailed information on the damages Wes sustained. As of now they are confident in assuming little baby Wes only has about 10 percent of normal kidney function. A very low number. His Keratin levels, which are an indication of kidney function for his age an weight should be about (.02). They are currently staying steady at a whooping (6.4) that is a huge difference an not in the good way. Now the reality is that Wes has a chance of a full recovery. It may take weeks, months or even longer: But there is a chance of recovery. The fact that Weston is producing urine is a good thing. He is still keeping dangerous levels under control. So the kidney doctors are very optimistic that he is trying to recover. So keep him in your prayers he stills need them! Every day is a battle an Weston is undefeated so far. i can only imagine how terrifying this must be for the parents. On the bright side it is great to hear there is a possibility that he could make a full recovery.
Thurak1 Psygod9 D.E.F.I.A.N.C.E 276	Posted - 2013.10.13 04:04:00 - [4] - Quote ragewardog wrote: Update 20 When the times come we all find we are stronger than we ever thought we were. I hope and pray that little Weston pulls through and that his ends up just being a short lived bad memory that you and the family tell stories about when he grows up.
Thurak1 Psygod9 D.E.F.I.A.N.C.E 276	Posted - 2013.10.13 04:10:00 - [5] - Quote I am sure i am not the only one that has been watching this very eagerly for updates. This is the latest update thus far to the gofundme page for them. You will want to read the whole thing there is some good news in this post :) Update 21 : 9:37 p.m. 10/10 At...Update 21 : 9:37 p.m. 10/10 At dawn this morning I reached out into hope. An with my pleas for compassion a bright sun rose for my family. Mandy and I met with a team of doctor's today. I prepared to hear news that I knew would shatter me at my core. Much to my surprise an pleasure, that was not to be the case this day. Weston is suffering from internal hemorrhaging. Bleeding in his lungs an abdomen along with acute renal failure (kidney failure). This is the culprit forcing the doctors to have given him 17 transfusions. They believe that because of his damaged kidneys the bleeding has continued. The kidney is interrupting with the functions of Weston's platelets. He is having problems clotting. Now the good news is this. Doctors believe that Weston has shown progress. Positive progress. They are comfortable giving him support when needed(transfusions) and letting him fight to recovery. The kidney doctors believe that the degeneration of his kidneys has stopped. They think that if he can manage to continue to produce urine an recover, that over time the bleeding will stop. Over time he will regain some kidney function. In hope, they even suggested that he may regain all kidney function. The only negative thing said today was that the doctors are concerned that Weston may have sustained brain damage during the ordeal. Lack of blood an oxygen to the body may have caused some damage. They are not saying it as a definite yet though. They are concerned because of the lack of movement from Weston these last few days. They are hoping that it is because of the morphine an are in high hopes that as the morphine wears off Weston will begin to show more signs of awareness. They also hope to ween him off of the ventilator this week. So in reality. If Weston can avoid sickness, keep his blood levels stable with support from doctors that he will grow, that he will LIVE. Weston is fighting, we all know that. He is fighting an gaining strength from all of you. Your prayers are keeping my family so strong. Please continue praying. Today was a very good day.
Thurak1 Psygod9 D.E.F.I.A.N.C.E 295	Posted - 2013.10.14 01:22:00 - [6] - Quote Ydubbs81 RND wrote: CCP should drop the remaining $4K to reach the goal for several reasons, tbh. While that would undoubtedly be a very nice and kind gesture I can understand why they likely won't. However what would also be very generous and would posibally help ccp even more would be advertizing and donating a part of aurum purchases or merc pack purchases towards the fundraiser. For example advertize that 25% of all aurum purchases between date x and date y will go towards this fundraiser. It would hopefully generate increased revenue for ccp and of course part of it would benefit the family. I hope they post pictures when the munchkin is allowed to go home. The video on the gofundme site at least for me was very blocky.
Thurak1 Psygod9 D.E.F.I.A.N.C.E 308	Posted - 2013.10.17 00:01:00 - [7] - Quote Evlyn Kong wrote: Can someone post his updates I can't from my phone ccp help Weston he is a future merc I would bet! So far update 21 is the latest update. From that update it sounds like good news for the munchkin. But i am betting even if things continue to go well it will be another week in the hospital. I just hope that they continue to get good news and that the munchkin is able to start putting on the pounds and get bigger and bigger. Hopefully the parents have been able to get at least one night of sleep here and there. I have my doubts on that though.
Thurak1 Psygod9 D.E.F.I.A.N.C.E 320	Posted - 2013.10.19 06:19:00 - [8] - Quote Thank you for the update. Sounds like weston is still chugging along.
Thurak1 Psygod9 D.E.F.I.A.N.C.E 329	Posted - 2013.10.22 01:26:00 - [9] - Quote Not the best of news with the latest updates. Lets hope this turns around for the little guy and the family. I think they primarily update this site: http://www.youcaring.com/medical-fundraiser/help-with-baby-weston-s-medical-expenses/92940 here is some background info for what i think they were talking about. I guess the good side to this is that it has been discovered very early. The re-test will confirm of course but i am betting the dr's are already making plans as though it is a true positive result. from webmd.com: Galactosemia is a rare, hereditary disorder of carbohydrate metabolism that affects the body's ability to convert galactose (a sugar contained in milk, including human mother's milk) to glucose (a different type of sugar). Galactose is converted to glucose by a series of three enzyme reactions. The disorder is caused by a deficiency of an enzyme known as "galactose-1-phosphate uridyl transferase" which is vital to this process. Galactosemia may also be referred to as classic galactosemia because a few variants of the gene for galactosemia have been identified. One variant causes a milder form of the disorder known as Duarte galactosemia. Classic galactosemia is the most severe form. Because milk is the staple of an infant's diet, early diagnosis and treatment of this disorder is absolutely essential to avoid serious lifelong disability. Updates 10/21/2013 by Christina Lockerd (Family Friend) Day 25 equals 20th transfusion. Weston tested positive. For galacticema. They are retesting to be certain. Barium enema to test for blockadge surgery to follow if necessary. Bad day Share on facebookShare on twitterShare on emailMore Sharing Services0 10/21/2013 by Christina Lockerd (Family Friend) Update : Frustration. Today we hit a wall with Weston's recovery. His stomach is swelling an he is unable to stool. He needed more blood yesterday an I fear stress, exhaustion n mental fatigue is taking affect on Mandy an I. We are short fused an agitated. We want to see Weston get better an are so frustrated with are inabilities' to assit that we lash out. Weston makes. A bit of progress an WAmO we get hit with a setback. Procedure in the morning to investigate him surgery to follow if needed. If your friend, family or acquaintance I apologize if Mandy or I seem easy aggitated or moody. Please understand we are under some odd circumstances and are still learning to deal nd cope with all of this Pa sry for typos wrote on my phone its 1 am and I am sitting in a park no spell check. - See more at: http://www.youcaring.com/medical-fundraiser/help-with-baby-weston-s-medical-expenses/92940#sthash.xRXNOxjL.dpuf
Thurak1 Psygod9 D.E.F.I.A.N.C.E 340	Posted - 2013.10.25 23:21:00 - [10] - Quote

Thurak1 Psygod9 D.E.F.I.A.N.C.E 368	Posted - 2013.11.09 04:26:00 - [11] - Quote Things just have to turn around for this little guy.
Thurak1 Psygod9 D.E.F.I.A.N.C.E 374	Posted - 2013.11.14 01:35:00 - [12] - Quote Death Dealer86 wrote: It's been awhile since I posted, just wanted to let you know that your family is still in my prayers. I check back daily as if Weston was my own. Stay strong and the updates are appreciated. I can't wait for the day that the updates bring wonderful news. Same here. I just keep thinking that every day he is getting closer to beating this and i hope i am right. When they are so small they are so vulnerable but every day they grow bigger and bigger (for that first year this seems almost like a literal statement they grow so fast in that first year its amazing) I truly hope Weston is getting better and putting on some pounds.
Thurak1 Psygod9 D.E.F.I.A.N.C.E 379	Posted - 2013.11.23 09:43:00 - [13] - Quote Best of luck Quickgloves. I hope everything goes well. It sounds like the doctors now have a plan which is good to hear. I hope the little guy is able to go home soon.
Thurak1 Psygod9 D.E.F.I.A.N.C.E 510	Posted - 2014.02.11 09:43:00 - [14] - Quote I really hope things are starting to look up for this little guy. I can't imagine how painful this must be for the family.
Thurak1 Psygod9 D.E.F.I.A.N.C.E 511	Posted - 2014.02.15 07:30:00 - [15] - Quote Quickgloves wrote: Weston is doing amazing!! finally breathing room air all by himself I was even able to try an give him a bottle today for the first time! ... TY againa to everyone that has helped suppoprt my family ! That is GREAT to hear! Hopefully soon this will all just be a bad memory and he can go about being a little boy causing all sorts of mischief around the house and getting into everything he can get his hands on.
Thurak1 Psygod9 D.E.F.I.A.N.C.E 670	Posted - 2014.05.13 09:14:00 - [16] - Quote Even if Dust 514 goes down into a heap upon itself at lest this is one great cause that the players were able to unit upon and help to make a very positive difference. Nothing beats the outcome of this either. I bet by now he is eating them out of house and home :)