PARKOUR PRACTIONER
Eternal Beings
4772
|
Posted - 2017.08.03 06:31:00 -
[1] - Quote
Short answer? Yes.
Long. Autism makes it extraordinarily difficult to communicate the most basic needs. Hungry, thirsty, pain. Autistics like myself have extremely high pain tolerance. So by the time i complain its 'go to the hospital immediately' time. And when i feel better I don't even think to say so. It just never crosses my mind to say anything unless I'm prompted ex 'Do your legs hurt?' 'Yes.' 'Did the mediation help your legs?' 'Yes.'
So if i can't communicate when somethings wrong, a condition preventing me from doing so until I absolutely cannot stand it (and i am fully capable of speaking most times), why shouldn't it be? I'm no professional, its just from a standpoint of an mildly (they say mild until I have meltdowns) autism and various painful medical conditions (at least six.)
Which is why I'm all for raising autism awareness in the medical field. All of my doctors and therapists say I'm the only autistic patient they have and are fascinated if they're not grade A jerks.
Just musings. On Friday I'm getting surgery, went to a 'special needs' dentist (you may know the ones, the ones who take on special needs patients but know nothing about the actual needs of the patient.) and going to be put under (that should be fun) to remove a impacted tooth.
Disclaimer I'm not bashing doctors or the profession. There just needs to be more awareness of autism and medical issues so there isn't as much confusion of why I'm not talking or why I waited so long to say something. Also i feel guilty enough that my brain doesn't let me say things immediately instead of six months later.
Disclaimer ll I've read the forum rules and it doesn't say anything about posting something like this and it's in the Locker Room. Outside of discussing forum moderation (as a disclaimer!) i should be fine. (Please don't lock this I'm not brave enough to post this anywhere else)
PSN SilentChaozz
Autistic with extreme chronic pain. Hey, it's a rare one!
|
PARKOUR PRACTIONER
Eternal Beings
4778
|
Posted - 2017.08.09 02:46:00 -
[2] - Quote
TooMany Names AlreadyTaken wrote:PARKOUR PRACTIONER wrote:Short answer? Yes.
Long. Autism makes it extraordinarily difficult to communicate the most basic needs. Hungry, thirsty, pain. Autistics like myself have extremely high pain tolerance. So by the time i complain its 'go to the hospital immediately' time. And when i feel better I don't even think to say so. It just never crosses my mind to say anything unless I'm prompted ex 'Do your legs hurt?' 'Yes.' 'Did the mediation help your legs?' 'Yes.'
So if i can't communicate when somethings wrong, a condition preventing me from doing so until I absolutely cannot stand it (and i am fully capable of speaking most times), why shouldn't it be? I'm no professional, its just from a standpoint of an mildly (they say mild until I have meltdowns) autism and various painful medical conditions (at least six.)
Which is why I'm all for raising autism awareness in the medical field. All of my doctors and therapists say I'm the only autistic patient they have and are fascinated if they're not grade A jerks.
Just musings. On Friday I'm getting surgery, went to a 'special needs' dentist (you may know the ones, the ones who take on special needs patients but know nothing about the actual needs of the patient.) and going to be put under (that should be fun) to remove a impacted tooth.
Disclaimer I'm not bashing doctors or the profession. There just needs to be more awareness of autism and medical issues so there isn't as much confusion of why I'm not talking or why I waited so long to say something. Also i feel guilty enough that my brain doesn't let me say things immediately instead of six months later.
Disclaimer ll I've read the forum rules and it doesn't say anything about posting something like this and it's in the Locker Room. Outside of discussing forum moderation (as a disclaimer!) i should be fine. (Please don't lock this I'm not brave enough to post this anywhere else) Let me get one thing straight... You're 100% aware that something is wrong, but you're just unable to say it for some reason? What a weird condition I must say. Perhaps it's curable, at least partially, if you manage to force yourself to take action.
You learn to communicate and function somewhat, but I'll always have this... block between thought and speech. It sounds convenient from the outside, but it's anything but. My words just... don't come out. Which is why i use text to speech device thing at times.
The best way to describe is the tip of my tongue feeling, just can't spit it out. Then there's a bunch of other stuff like social queues and misinterpreted speech (example, you said 2+2=4, what my brain heard was a complex algorithm that Sherlock couldn't solve). It sounds absolutely ridiculous at times, but that's me. If all else fails I'll just tap or bring the thing I want.
PSN SilentChaozz
Autistic with extreme chronic pain. Hey, it's a rare one!
|